JollyRoger's blog

The procedure was a success and Megan now has a GJ tube, for her feedings. Now, the test will be, does it work. We will soon see. Everything went well, and as you can see, she is at peace. :)




Thank you all for your prayers. God was in that place. There were no worries at all, just complete serenity.


END OF LINE


JR

10/2/07 Update:

10/2/07 Update:

The second part of the great weekend, came yesterday. A benefit golf tournament called Fore-A-Cure, benefiting the United Mitochondrial Disease Foundation, again at www.umdf.org So, I got to play at my first private country club. It was absolutely amazing. I could not have asked for better weather, and have never been treated so well, at a golf course, in all my life. Goodie bags and gift cards galore. I won two gift cards for fine dining in downtown Atlanta, so now Stacy and I can have a nice date night.

The second part of the great weekend, came yesterday. A benefit golf tournament called Fore-A-Cure, benefiting the United Mitochondrial Disease Foundation, again at www.umdf.org So, I got to play at my first private country club. It was absolutely amazing. I could not have asked for better weather, and have never been treated so well, at a golf course, in all my life. Goodie bags and gift cards galore. I won two gift cards for fine dining in downtown Atlanta, so now Stacy and I can have a nice date night.

First off, apologies to Wilderz and BCKinetic, for not being able to make it over the weekend to do H3, co-op. Hopefully, we can still do it this week.

First off, apologies to Wilderz and BCKinetic, for not being able to make it over the weekend to do H3, co-op. Hopefully, we can still do it this week.

Well, tonight's the night. Stacy and I are volunteering at the Music for Megan concert tonight at Wills Park in Alpharetta, GA. I will be helping with the parking and Stacy will be selling waters for the benefit. No, this is not named after our Megan, but it is all to benefit the UMDF and help find a cure for the disease that our MEgan shares with a number of other children, including the namesake of the concert. So, Halo 3 is on the back burner until I get home.

Well, tonight's the night. Stacy and I are volunteering at the Music for Megan concert tonight at Wills Park in Alpharetta, GA. I will be helping with the parking and Stacy will be selling waters for the benefit. No, this is not named after our Megan, but it is all to benefit the UMDF and help find a cure for the disease that our MEgan shares with a number of other children, including the namesake of the concert. So, Halo 3 is on the back burner until I get home.

I am going to attempt to make this somewhat brief but here is an abbreviated version of how the appointment with the Mito doctor went today. First of all she did a wonderful job explaining something very complicated. Mitochondrial in itself is extremely complicated. But in Megan's case she discussed several things. She said that Megan is multi-complex, meaning Megan has all the complexes of Mito disease except for Complex V. Megan also has dysmotility. This explains why Megan has such severe vomiting episodes.