JollyRoger's blog

JollyRoger

Shared on Thu, 09/27/2007 - 15:36

Our long awaited follow-up appointment

I am going to attempt to make this somewhat brief but here is an abbreviated version of how the appointment with the Mito doctor went today. First of all she did a wonderful job explaining something very complicated. Mitochondrial in itself is extremely complicated. But in Megan's case she discussed several things. She said that Megan is multi-complex, meaning Megan has all the complexes of Mito disease except for Complex V. Megan also has dysmotility. This explains why Megan has such severe vomiting episodes.

JollyRoger

Shared on Tue, 09/25/2007 - 07:27

Three weeks and 2 days

That's how long it had been since I turned on the 360. I was a bit worried, after reading T3's horrific episode. But, I had to turn it on to make sure it still worked. So, I use the wireless controller and turn it on. Whew! It works. I navigated around a bit to make sure I still knew how to get around. Received a couple of H2 invites, but declined due to simply navigating the system, not playing. It was good to turn the machine on again. Looking forward to gaming with all of you again. Very soon. :) The three weeks off was well needed and wonderfully enjoyed.

JollyRoger

Shared on Tue, 09/25/2007 - 07:27

Three weeks and 2 days

That's how long it had been since I turned on the 360. I was a bit worried, after reading T3's horrific episode. But, I had to turn it on to make sure it still worked. So, I use the wireless controller and turn it on. Whew! It works. I navigated around a bit to make sure I still knew how to get around. Received a couple of H2 invites, but declined due to simply navigating the system, not playing. It was good to turn the machine on again. Looking forward to gaming with all of you again. Very soon. :) The three weeks off was well needed and wonderfully enjoyed.

JollyRoger

Shared on Mon, 09/24/2007 - 11:20

An honor and a privilege

I just wanted to share that, over the last couple of weeks, I have been able to meet a couple of fellow 2o2p'ers. I want to say that it was a pleasure, honor and a privilege to have met Scvff/LtBlarg and Gatsu. Met up with LT at the North Georgia Air Show a couple of weeks ago, met his family and had an awesome time. Hosted Gatsu this past Saturday, just hung out, ate some good lunch and just chit chatted about stuff. Good stuff and great conversation. Thanks to the both of you for taking some time out of your schedules to meet with me, and my family, and hope to meet up again real soon.

JollyRoger

Shared on Mon, 09/24/2007 - 11:20

An honor and a privilege

I just wanted to share that, over the last couple of weeks, I have been able to meet a couple of fellow 2o2p'ers. I want to say that it was a pleasure, honor and a privilege to have met Scvff/LtBlarg and Gatsu. Met up with LT at the North Georgia Air Show a couple of weeks ago, met his family and had an awesome time. Hosted Gatsu this past Saturday, just hung out, ate some good lunch and just chit chatted about stuff. Good stuff and great conversation. Thanks to the both of you for taking some time out of your schedules to meet with me, and my family, and hope to meet up again real soon.

JollyRoger

Shared on Thu, 09/20/2007 - 09:35

One last set

Last set of pics from our photo session. Most of these the boys being candid. And a couple of family pics at the bottom. I really wanted to post these to show my friends and family, here at 2old2play, that even with all of the bad news and worries of what the future holds, we are trying to move on with life and live as normal as possible. This was just a fun day for us and I hope you all enjoy seeing all of these as much as we had fun making them. Take care everyone and God bless you all. :)




JollyRoger

Shared on Thu, 09/20/2007 - 09:35

One last set

Last set of pics from our photo session. Most of these the boys being candid. And a couple of family pics at the bottom. I really wanted to post these to show my friends and family, here at 2old2play, that even with all of the bad news and worries of what the future holds, we are trying to move on with life and live as normal as possible. This was just a fun day for us and I hope you all enjoy seeing all of these as much as we had fun making them. Take care everyone and God bless you all. :)




JollyRoger

Shared on Wed, 09/19/2007 - 14:14

Strolling through park one day....

Last set for today. I may post some more tomorrow.

JollyRoger

Shared on Wed, 09/19/2007 - 14:14

Strolling through park one day....

Last set for today. I may post some more tomorrow.

JollyRoger

Shared on Wed, 09/19/2007 - 11:32

Rub-a-dub-dub..Megan in a tub




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JR

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