JollyRoger's blog

Today was better. I keep repeating this in my mind:


"When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou has taught me to say,
It is well, it is well, with my soul."


"Praise the Lord, O my soul.” Psalm 146:1"


END OF LINE


JR

Today was better. I keep repeating this in my mind:


"When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou has taught me to say,
It is well, it is well, with my soul."


"Praise the Lord, O my soul.” Psalm 146:1"


END OF LINE


JR

A few things have happened today:

*Dr. Shoffner will not be able to meet with us until September. And the follow up will have to be approved through insurance, otherwise it is $300 out-of-pocket. Ugh.
*We are going to have a hard time getting insurance to approve her medication, which fate would have it, is quite expensive. The reason being is since mitochondrial diseases are still new in the medical realm, all treatments may be considered experimental, thus unapproved.

A few things have happened today:

*Dr. Shoffner will not be able to meet with us until September. And the follow up will have to be approved through insurance, otherwise it is $300 out-of-pocket. Ugh.
*We are going to have a hard time getting insurance to approve her medication, which fate would have it, is quite expensive. The reason being is since mitochondrial diseases are still new in the medical realm, all treatments may be considered experimental, thus unapproved.

Just to cover all my bases, I am posting this here:

http://www.2old2play.com/modules.php?name=Forums&file=viewtopic&p=308948#308948

Good day to all of 2old2play. I just wanted to briefly spill my guts for just a moment and thank all of you for everything, and I mean everything, that you have done and meant to my family. For those who don’t know, my daughter Megan was recently diagnosed with Mitochondrial Encephalomyopathy Complex I and Complex III.

Just to cover all my bases, I am posting this here:

http://www.2old2play.com/modules.php?name=Forums&file=viewtopic&p=308948#308948

Good day to all of 2old2play. I just wanted to briefly spill my guts for just a moment and thank all of you for everything, and I mean everything, that you have done and meant to my family. For those who don’t know, my daughter Megan was recently diagnosed with Mitochondrial Encephalomyopathy Complex I and Complex III.

I will be posting this in each of my clan's forums, and blog, so everyone will be able to read this update. It is important to me that you all have the opportunity to read, as all of you ave either been praying or thinking of  Megan since this all began. And not everyone reads the Off Topic page regularly. Stacy and I are a bit heart broken by all of this, but relieved the guessing is over. That's all I am really in the mood to say for the moment, I apologize that it's short but here goes:

I will be posting this in each of my clan's forums, and blog, so everyone will be able to read this update. It is important to me that you all have the opportunity to read, as all of you ave either been praying or thinking of  Megan since this all began. And not everyone reads the Off Topic page regularly. Stacy and I are a bit heart broken by all of this, but relieved the guessing is over. That's all I am really in the mood to say for the moment, I apologize that it's short but here goes:

[youtube]http://youtube.com/watch?v=XPfKtwwUN5w[/youtube]



END OF LINE


JR

[youtube]http://youtube.com/watch?v=XPfKtwwUN5w[/youtube]



END OF LINE


JR