JollyRoger
Shared on Thu, 05/31/2007 - 07:26I will be posting this in each of my clan's forums, and blog, so everyone will be able to read this update. It is important to me that you all have the opportunity to read, as all of you ave either been praying or thinking of Megan since this all began. And not everyone reads the Off Topic page regularly. Stacy and I are a bit heart broken by all of this, but relieved the guessing is over. That's all I am really in the mood to say for the moment, I apologize that it's short but here goes:
Late yesterday we received Megan’s biopsy results and unfortunately the news is not good. Megan has been diagnosed with a Mitochondrial disease called Mitochondrial Encephalomyopathy. At this moment I can not elaborate on it very much. We have to call today and get an appointment with Dr. Schoffner so he can go into great detail with us about and advise of what our next step is going to be. Praise God we finally have an answer for all of this, however, this answer hurts very bad. Please pray for Megan and please pray for the doctors that are going to be taking Megan on as their patient and her existing doctors too. Lastly please pray for our family, this is absolutely devastating and heart breaking. Thank you very much and God Bless.
I was reluctant to research a bit on my own last night at church, but I had to know and the prognosis is not good. There are a couple of different diseases related to this particular mitochondrial disease. MELAS and Leigh Syndrome. Both of these have a poor prognosis. Children with Leigh Syndrome are not expected to live very long, it says early years to late teens. Children diagnosed with MELAS (Mitochondrial Encephalomyopathy Lactic Acidosis Stroke-like symptoms) have a life expectancy of 10-35 years. Now, I know that may seem like a long time, but putting a finite time on your daughters life is heart wrenching and a terrible thought to boot. We will know more once we see Dr. Schoffner. Thank you from the uttermost depths of our souls for everything you all have done for us. Continue to pray.
Jim, Stacy, Jimmie, Ian-Thomas and Megan Cochran
END OF LINE
JR
Late yesterday we received Megan’s biopsy results and unfortunately the news is not good. Megan has been diagnosed with a Mitochondrial disease called Mitochondrial Encephalomyopathy. At this moment I can not elaborate on it very much. We have to call today and get an appointment with Dr. Schoffner so he can go into great detail with us about and advise of what our next step is going to be. Praise God we finally have an answer for all of this, however, this answer hurts very bad. Please pray for Megan and please pray for the doctors that are going to be taking Megan on as their patient and her existing doctors too. Lastly please pray for our family, this is absolutely devastating and heart breaking. Thank you very much and God Bless.
I was reluctant to research a bit on my own last night at church, but I had to know and the prognosis is not good. There are a couple of different diseases related to this particular mitochondrial disease. MELAS and Leigh Syndrome. Both of these have a poor prognosis. Children with Leigh Syndrome are not expected to live very long, it says early years to late teens. Children diagnosed with MELAS (Mitochondrial Encephalomyopathy Lactic Acidosis Stroke-like symptoms) have a life expectancy of 10-35 years. Now, I know that may seem like a long time, but putting a finite time on your daughters life is heart wrenching and a terrible thought to boot. We will know more once we see Dr. Schoffner. Thank you from the uttermost depths of our souls for everything you all have done for us. Continue to pray.
Jim, Stacy, Jimmie, Ian-Thomas and Megan Cochran
END OF LINE
JR
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