
JollyRoger
Shared on Thu, 05/08/2008 - 17:18Ok, so what started out to be a decent day, became a sever dose of reality. Dr. Kendall (Mito doc) came by and met with Stacy and Dr. Blumenthal (GI doc) and everything came down to a couple of point hat felt like a jagged pill. First, Megan's disease is progressing. Sure, we knew that but hearing it again made it tough to hear from the doctor's mouth. The second point is what was like getting hit in the face with a 2 x 4. Dr. Kendall said, and Dr. Blumenthal agreed, as Megan's disease progresses, options and treatments get fewer and things get worse. She has progressed from a simple nose tube, to feed, to a g-tube, to a j-tube. The only other option left is IV feeds. After that, nothing. Now, she is not at the point for needing IV feeds yet, but they both say she is step closer. Folks, I don't know how to put it any more plainly. You see what they are saying, I'm not going to type it. I'm a bit at a loss for words, and Stacy is a bit depressed about this news. I'm doing my best to be an encouragement and my strength is almost gone. This jagged pill is going to be painful for the next couple of days. I just want my family home.
I praise God with all that is within me and pray for the strength that only He can provide. Everything that happens is His will, not mine. Instill in me the strength to withstand the pounding of the waves and winds of the storm. For upon the Rock I have built my house. Amen!
END OF LINE
JR
I praise God with all that is within me and pray for the strength that only He can provide. Everything that happens is His will, not mine. Instill in me the strength to withstand the pounding of the waves and winds of the storm. For upon the Rock I have built my house. Amen!
END OF LINE
JR
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