Jolly's Log: Hospital; Day 1 (And a poem from a relative)

Well, it looks like we have taken up residency at Scottish Rite Hospital again for a while. Megan was admitted this morning after her surgery. Her GI doctor took her weight and she now only weighs 12 pounds 6 ounces. This is perhaps the lowest she has dropped. It seems as though now, instead of just not gaining weight she is now losing and pretty rapidly. To jump back just a little, her tube replacement went well. I knew what to expect this time and I even helped with the procedure. It was ok because technically I have to know how to replace it if it comes out while we are at home. I have all the equipment in her bag if I need it but I would like to feel a little confident in using it should the time come. I kind of already knew but I wasn’t paying too much attention the first time she had this done. Anyways, he said that the tube she had in was too big for her so he put a smaller one in but it seems as though that is a little too big too. He said he would leave it in for right now but we may have to try a whole other different type of tube. So, let’s see, they did an upper GI on her today to make sure that her fundo was still in tact. It is still in there, which is amazing considering how this child can puke. But it also showed that parts of her intestines are thickening and she is emptying very rapidly. We are not sure what all this means yet but when her doctor comes in tomorrow we will talk about it then. It could very well explain why she is not gaining weight, the only problem is how to fix it and I am praying there will be a way for them to fix it. Her GI doctor said that she just can’t keep going on like this and she won’t be able to if this keeps up so they have to find some way to get weight on her and fast. That is VERY hard to hear although we knew it already. She also had blood work done and everything was ok except her level came back elevated showing that she has an infection and inflammation. I will know more tomorrow on what exactly that means. Megan is doing ok, I guess. She is very tired and I know she just doesn’t understand why she is trapped in this hospital bed again.

I guess you all are wondering why you are getting an email from me. Well, Jim and I were afraid this was going to happen so we already had a plan worked out just in case with us and my parents. I had packed everyone’s bags last night and my parents were coming to take care of the boys while Megan went for her tube change. That way if we got admitted they would already have their bags packed and my parents could just take them back home. It is a huge stress taken off of us knowing they are able to be with them but I know it is hard on my parents. Please pray for my mom. She has very bad back problems and her doctor told her that her spine is narrowing. If she were to fall she could very easily be instantly paralyzed. I know there is more to it but I can’t remember all the details right now. My dad fell off the ladder going up to the attic last week and so he is very sore and doesn’t need any more pain in his back either. Anyways, I know that they would do anything for us and I appreciate it so much but I don’t want them to hurt themselves either. Jim and I talked about it and it is just so wonderful for them to be able to be in one place with my parents because it kind of takes the stress off of the boys with everything going on. They only know Megan either being home for a little bit and then back in the hospital. We are just trying to keep some sort of normalcy in their lives during this time. Does that make any sense? Anyways, back to why I am emailing you. Jim and I decided that we both needed to be able to work and since I am able to work from home, I would stay at the hospital during the day and then come home at night and work. Jim would go to work during the day and stay at the hospital at night. It works and we are so thankful to be able to have this type of flexibility as hard as it might be. Walking out of that hospital tonight with out Megan, knowing that she was laying up in that hospital bed was a little harder than I thought. I felt like the worst mother in the world. But I knew this was what we had to do. We are just going to praise God and then pray that He will give us the strength we need to make it through this again. I think the hardest thing was sitting here working and I still have her monitor on down in my office. I heard this noise and I started to go up to check on Megan and realized she wasn’t there. It just brought tears to my eyes. But I am doing much better now and we have accepted that this is going to be our lives until Megan gets out of the hospital. God is so great! Even though Megan has been put back in again, and things aren’t going as good as we had hoped, He still works out a way for us to work, be with Megan and have our boys in a good home. Well, I won’t be able to check my email until night time but if you would like an update our number at the hospital is 404-785-4132 and Megan is in room 132. We definitely welcome visitors but we do ask that you put a mask on that are right outside on the door and please use the hand sanitizer next to the door. Thank you all so much for your prayers and phone calls. It really does help to know that there are people out there praying! Love you all and God Bless.

LITTLE PINK ANGEL

WEAK LITTLE BODY

STRONG BEYOND HER YEARS

STILL MANAGES A SMILE

EVEN WITH EYES FULL OF TEARS

LITTLE PINK ANGEL

SHE DOESN’T UNDERSTAND THE FIGHT

BUT SHE’S A FIGHTER

SHE DOESN’T UNDERSTAND THE CLIMB

BUT CLIMBS A LITTLE HIGHER

LITTLE PINK ANGEL

SHE HAS A SPECIAL PURPOSE

MAYBE SHE’S SENT HERE TO TEACH US

THAT EVERY MOMENT IS PRECIOUS

A LESSON OF STRENGTH AND FAITH

A LESSON OF LOVE

LITTLE PINK ANGEL

GODS LITTLE GIFT

THAT HAS NO PRICE

LOVING AND TENDER

HEAVENLY AND NICE

LITTLE PINK ANGEL