Reality setting in

JollyRoger

Shared on Thu, 05/08/2008 - 17:18
Ok, so what started out to be a decent day, became a sever dose of reality. Dr. Kendall (Mito doc) came by and met with Stacy and Dr. Blumenthal (GI doc) and everything came down to a couple of point hat felt like a jagged pill. First, Megan's disease is progressing. Sure, we knew that but hearing it again made it tough to hear from the doctor's mouth. The second point is what was like getting hit in the face with a 2 x 4. Dr. Kendall said, and Dr. Blumenthal agreed, as Megan's disease progresses, options and treatments get fewer and things get worse. She has progressed from a simple nose tube, to feed, to a g-tube, to a j-tube. The only other option left is IV feeds. After that, nothing. Now, she is not at the point for needing IV feeds yet, but they both say she is step closer. Folks, I don't know how to put it any more plainly. You see what they are saying, I'm not going to type it. I'm a bit at a loss for words, and Stacy is a bit depressed about this news. I'm doing my best to be an encouragement and my strength is almost gone. This jagged pill is going to be painful for the next couple of days. I just want my family home.

I praise God with all that is within me and pray for the strength that only He can provide. Everything that happens is His will, not mine. Instill in me the strength to withstand the pounding of the waves and winds of the storm. For upon the Rock I have built my house. Amen!


END OF LINE



JR

Comments

Devonsangel's picture
Submitted by Devonsangel on Thu, 05/08/2008 - 17:22
I'm at a loss for words other than my prayers are still with you and the family.
doodirock's picture
Submitted by doodirock on Thu, 05/08/2008 - 17:23
Be strong Jolly. We are with you
Lbsutke's picture
Submitted by Lbsutke on Thu, 05/08/2008 - 17:27
We are here when you need us man...Just say the word.
JDSourMash's picture
Submitted by JDSourMash on Thu, 05/08/2008 - 17:39
I've always admired the strength and faith you've shown through all of this, Jolly. As always, my prayers are with you, Stacey, Megan and your whole family. God Bless.
bunky's picture
Submitted by bunky on Thu, 05/08/2008 - 17:59
I'm at a loss of words too. My thoughts and prayers go to your family. Take care, Jolly
Pulsaris's picture
Submitted by Pulsaris on Thu, 05/08/2008 - 18:23
It pains my heart to hear about your recent news. Same for my wife. I truly hope for the best. We'll be praying for Megan and your family. Stay strong.
Cerberus4417's picture
Submitted by Cerberus4417 on Thu, 05/08/2008 - 18:32
Our prayers are with you and your family.
H2Daddy's picture
Submitted by H2Daddy on Thu, 05/08/2008 - 19:20
My prayers and my family's prayers are with all of you.
hilskie's picture
Submitted by hilskie on Thu, 05/08/2008 - 19:26
I feel like everyone else...I took a moment last night and read through all your blog posts...and I just want you to know, that you and your family are in my thoughts and prayers. Take care, and enjoy the time you have with your family.
jquack's picture
Submitted by jquack on Thu, 05/08/2008 - 19:47
God will work this out for good. Keep your faith bro.
Gatsu's picture
Submitted by Gatsu on Thu, 05/08/2008 - 19:53
it is a hard pill to swallow. I am so sorry Jim. You know we are all here for you and your family. And we will continue to keep your family in prayer.
FreynApThyr's picture
Submitted by FreynApThyr on Thu, 05/08/2008 - 20:38
In my darkest hour it always helps when I remember that by my own strength I could never have lived long enough to treasure the things that I fear losing. I have been carried to this place by a strength far greater than any I could muster alone. Remembering this helps me to partake of that strength again when I need it. I'll keep you and yours in my thoughts.
etxqtpi's picture
Submitted by etxqtpi on Thu, 05/08/2008 - 20:50
Jolly, The words that immediately flooded my mind were the words of the Casting Crowns song "Praise You in This Storm." I have seen you portray exactly what this song says and I can't thank you enough for being the wonderful witness that you are to the many many people on this site. Here are the lyrics for those of you who don't know them. Praise You in This Storm words by Mark Hall/music by Mark Hall and Bernie Herms I was sure by now,God, that You would have reached down and wiped our tears away, stepped in and saved the day. But once again, I say amen and it's still raining as the thunder rolls I barely hear You whisper through the rain, "I'm with you" and as Your mercy falls I raise my hands and praise the God who gives and takes away. Chorus: And I'll praise you in this storm and I will lift my hands for You are who You are no matter where I am and every tear I've cried You hold in your hand You never left my side and though my heart is torn I will praise You in this storm I remember when I stumbled in the wind You heard my cry to You and raised me up again my strength is almost gone how can I carry on if I can't find You and as the thunder rolls I barely hear You whisper through the rain "I'm with you" and as Your mercy falls I raise my hands and praise the God who gives and takes away Chorus I lift my eyes onto the hills where does my help come from? My help comes from the Lord, the maker of heaven and earth I lift my eyes onto the hills where does my help come from? My help comes from the Lord, the maker of heaven and earth Chorus Blessings, Jenny
DeadDrPhibes's picture
Submitted by DeadDrPhibes on Thu, 05/08/2008 - 22:11
We're all here for you.. I can't imagine what it must be like, but if there's every anything at all i can do to help out, just say the word..
dkhodz's picture
Submitted by dkhodz on Thu, 05/08/2008 - 22:23
I have kind of wondered when you would hit this point. You both have been amazingly peaceful throughout this. I'm sure you will have many emotional times ahead of you and I just hope you will be given the strength you will need. When the doubts and the anger come, don't feel ashamed for how you feel. Just know that as a human you sometimes cannot control the emotions that you feel. Just seek to recapture the peace that you have felt during better times and trust that you are able to withstand what has been put in your life. I pray you will both have abundant strength, love for each other and your family, and trust. And with time, peace will come too... but I'm sure it will not come easy. Praying for you guys! -Kevin
Eviluncle's picture
Submitted by Eviluncle on Thu, 05/08/2008 - 22:46
My thoughts are with you my brother
Stone's picture
Submitted by Stone on Fri, 05/09/2008 - 09:08
You are in our thoughts and prayers.
Steedman's picture
Submitted by Steedman on Fri, 05/09/2008 - 10:14
Let us know if we can do anything to help. We're here for you.
SqueakieWife's picture
Submitted by SqueakieWife on Fri, 05/09/2008 - 10:29
I really felt that God laid this on my heart to share with you. Even though the fig tree shall not blossom, and there are no grapes on the vines; even though the olive crop fails, and the fields lie empty and barren; even though the flocks die in the fields, and the cattle barns are empty, yet I will rejoice in the Lord! I will be joyful in the God of my Salvation! The Sovereign Lord is my strength! Habakkuk 3:17-19 (NLT) Also remember And He said to me, "My grace is sufficient for you, for My strength is made perfect in weakness." 2 Corinthians 12:9 (NKJV) We will continue to pray!
T3muJin's picture
Submitted by T3muJin on Fri, 05/09/2008 - 12:58
So sorry Jolly :*-(

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