Punch to the stomach

Once again we are faced with dealing with Megan's mortality. Just when you think things are going well, we get news of another child fighting for their very life. Bekah is the subject of Stacy's recent post on Megan's Carepage. Here is and excerpt:

I am not meaning for this post to be depressing but I just wanted to share with you how awful this Mitochondrial disease is and why we so desperately need a cure. There is a little girl named Bekah who has a mitochondrial disease. Over the last year her health has rapidly declined. She is in Scottish Rite Hospital right now not doing well and here is the post her mom put up tonight:

“This will be technical...so here goes. Bekah has severe dysmotility (this means her intestine doesn't move food, digest it, or absorb it's nutrients) today, the decision was made by us and her physicians that the ketogenic diet cannot be continued due to this. As you all know, her health has rapidly declined over the past year. This disease has destroyed many cells in her body causing organ damage and thus her organs do not work the way they should. Due to her disease and the severity of it, she is not a candidate for organ transplant or many other treatment options. Well, let's face it there ARE not viable treatment options for this disease. Her little body is very tired. There are not words to express how I feel right now. I love you all and appreciate all of your prayers...Kristi. “

A year ago Bekah looked as normal as Megan and just as happy. Now she struggles as her body no longer accepts food. Bekah is close to going Home and I am struggling vigorously to not think about comparing her and Megan, but the the truth is there and the reality is present and in our faces. Oh God, it hurts to think what Kristi and her family are going through. So much pain, it makes me sick. We could be posting something like that next year, my heart can barely stand the thought. As I hiked the mountain to help relieve some stress, yet another song hit me square between the eyes.

Anyways by Martina McBride

You can spend your whole life building something from nothing
One storm can come and blow it all away
Build it anyway
You can chase a dream that seems so out of reach and you know it might not ever come your way
Dream it anyway

Chorus:
God is great, but sometimes life ain't good
And when I pray it doesn't always turn out like I think it should
But I do it anyway, I do it anyway

This world's gone crazy and it's hard to believe that tomorrow will be better than today
Believe it anyway
You can love someone with all your heart, for all the right reasons, and in a moment they can choose to walk away
Love 'em anyway

Repeat Chorus

You can pour your soul out singing a song you believe in that tomorrow they'll forget you ever sang
Sing it anyway, sing it anyway

I sing, I dream, I love, anyway

If you watch the video, pay attention to the thoughts