JollyRoger
Shared on Tue, 10/24/2006 - 08:21We had to put Megan in the hospital again yesterday. She, basically, passed out in Stacy's arms yesterday while making a routine visit to her GI doctor. She has lost weight again and is back under 13lbs (12lbs 12oz). For those of you who don't know about Megan, here is the long and short of it (there are some old updates in the Off Topic section somewhere, you would have to go look for them-they have a little more info) She is my 8 month old daughter who has only gained a total of 3lbs 12oz since birth. The doctors have been perplexed by her condition and have yet to diagnose her with anything significant. She has had a feeding tube put in, through her stomach to eat. She can not take anything by mouth, due to her silent aspiration (liquids go directly into her lungs, without her coughing) and constant acid reflux and vomiting. They performed and MRI on her head this morning and we should get some results this afternoon or evening. Dr. Blumethal said she will remain in the hospital until they find out what is going on with her. He is convinced that it is, somehow, neurological. She had an Upper GI done last week and everything looked fine. If you are wondering, or wanting to ask "What is wrong with her?", all I can say is "I don't know, and the doctors are working on trying to find out." That has been my answer for about 7 months now and contiues to be to this day. They just don;t know what is wrong with her. They took 7 viles of blood last night, and will be doing a urine test, stool sample and sweat test (Cystic Fibrosis). They have called in a Neurologist to look at the MRI for any signs of Cerebral Palsey, or any other neurological disease.
This brings me to my next point, Stacy and I are at our wits end and are having a hard time with the whole "We don't know what is wrong with her." excuses. There are times when she does very well, but it goes bad, it goes real bad and all we hear is "We are trying to find out." Well, that does not help me in any way, shape or form. Especially, when trying to explain it to everyone who wants to know about her. My family and I are Christians, and believe that God has a wonderful plan for our daughter, as she has already touched so many lives, both on this site and here at home. People from all over the world know about her and are praying for her. God is definitely using her for a greater purpose, and for that, I am eternally thankful. Thanks for your time and I pray that this will all end soon and we will get a diagnosis so we can move on. Here are a couple of pics:



These were taken back in June, I believe. She has not changed at all since then. Actually, if anything, she has gotten thinner. She has grown in length by a couple of inches, but no actual weight being put on. Anyways, I'm rambling. Take care everyone.
END OF LINE
JR
This brings me to my next point, Stacy and I are at our wits end and are having a hard time with the whole "We don't know what is wrong with her." excuses. There are times when she does very well, but it goes bad, it goes real bad and all we hear is "We are trying to find out." Well, that does not help me in any way, shape or form. Especially, when trying to explain it to everyone who wants to know about her. My family and I are Christians, and believe that God has a wonderful plan for our daughter, as she has already touched so many lives, both on this site and here at home. People from all over the world know about her and are praying for her. God is definitely using her for a greater purpose, and for that, I am eternally thankful. Thanks for your time and I pray that this will all end soon and we will get a diagnosis so we can move on. Here are a couple of pics:



These were taken back in June, I believe. She has not changed at all since then. Actually, if anything, she has gotten thinner. She has grown in length by a couple of inches, but no actual weight being put on. Anyways, I'm rambling. Take care everyone.
END OF LINE
JR
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Comments
Submitted by stang503421 on Wed, 10/25/2006 - 21:45
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