JollyRoger
Shared on Tue, 07/31/2007 - 07:46Here is a bit more info about it:
Ok, we have a very big date coming up on September 28th. It is called music for Megan. This is a benefit to raise money for the United Mitochondrial Foundation for further research and to raise awareness for Mitochondrial diseases. Megan is a little girl who lives in Alpharetta, GA and was diagnosed with this disease when she was 16 months old. I have had the wonderful pleasure of calling her mom one of my friends. Well they have put together this benefit and all the money raised is going to the United Mitochondrial Foundation. This is such a big deal. I know it is hard to get excited about something that there is not enough information about but this disease affects children and a lot of children have passed away from this disease. I am asking if you can to please PLEASE come out and support an amazing and worthy cause. It is going to be phenomenal. There will be food, concerts, games and much MUCH more. They are also going to have pictures of some kids with their bio's all around the park just so you can really see how this disease has affected these children. Laura is kind enough to put our Megan and her bio on a sign as well. I pray that not just families that are affected by Mito but people who are not will attend this event. You see, research is key. There is no cure....yet. Lord willing, one day there will be but it will take people like you and me to get involved to get awareness out there. Please consider buying a ticket for this event. This is for our Megan, their Megan, Brody, Gwendolyn, Mallory and all the other children who have been diagnosed and will be diagnosed with this incredibly difficult disease. If you would like more information please contact me or you can go to www.meganshope.org to purchase tickets or to the Mitochondrial web site at www.umdf.org to make a donation. Thank you guys so much. We are so blessed to have family like you all! On Megan's web site it says "Megan's Hope...Hope for awareness...Hope for a miracle....Hope for a cure. What if you were told you have a life threatening disease you have never heard of and no one you know has heard of it either." That is what all this is about. Please join us at this very special event. We would be so blessed to be able to share this with you guys. God Bless!
Here is one way you can help, for you folks who have little girls...or boys who like to wear bows. (LOL)
Hey, check out www.girlygirlbows.net and scroll down to see our Megan. She is making some bows for Megan and we will post new pics of her in her girly girl bows up then. Right now if you make a purchase through her she will donate 10% to the benefit on September 28th and then ever time after the 28th she will donate it to the United Mitocondrial Foundation. This is so cool! The bows are all hand made and VERY cute! They are way cheaper than you can buy in a store. If you have a girl you know how expensive bows are. Anyways, just wanted to share
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JR
Ok, we have a very big date coming up on September 28th. It is called music for Megan. This is a benefit to raise money for the United Mitochondrial Foundation for further research and to raise awareness for Mitochondrial diseases. Megan is a little girl who lives in Alpharetta, GA and was diagnosed with this disease when she was 16 months old. I have had the wonderful pleasure of calling her mom one of my friends. Well they have put together this benefit and all the money raised is going to the United Mitochondrial Foundation. This is such a big deal. I know it is hard to get excited about something that there is not enough information about but this disease affects children and a lot of children have passed away from this disease. I am asking if you can to please PLEASE come out and support an amazing and worthy cause. It is going to be phenomenal. There will be food, concerts, games and much MUCH more. They are also going to have pictures of some kids with their bio's all around the park just so you can really see how this disease has affected these children. Laura is kind enough to put our Megan and her bio on a sign as well. I pray that not just families that are affected by Mito but people who are not will attend this event. You see, research is key. There is no cure....yet. Lord willing, one day there will be but it will take people like you and me to get involved to get awareness out there. Please consider buying a ticket for this event. This is for our Megan, their Megan, Brody, Gwendolyn, Mallory and all the other children who have been diagnosed and will be diagnosed with this incredibly difficult disease. If you would like more information please contact me or you can go to www.meganshope.org to purchase tickets or to the Mitochondrial web site at www.umdf.org to make a donation. Thank you guys so much. We are so blessed to have family like you all! On Megan's web site it says "Megan's Hope...Hope for awareness...Hope for a miracle....Hope for a cure. What if you were told you have a life threatening disease you have never heard of and no one you know has heard of it either." That is what all this is about. Please join us at this very special event. We would be so blessed to be able to share this with you guys. God Bless!
Here is one way you can help, for you folks who have little girls...or boys who like to wear bows. (LOL)
Hey, check out www.girlygirlbows.net and scroll down to see our Megan. She is making some bows for Megan and we will post new pics of her in her girly girl bows up then. Right now if you make a purchase through her she will donate 10% to the benefit on September 28th and then ever time after the 28th she will donate it to the United Mitocondrial Foundation. This is so cool! The bows are all hand made and VERY cute! They are way cheaper than you can buy in a store. If you have a girl you know how expensive bows are. Anyways, just wanted to share
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JR
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Submitted by ekattan on Tue, 07/31/2007 - 07:52