JollyRoger
Shared on Fri, 09/07/2007 - 12:44This is the latest from Stacy and I:
It's not about us.
A simple statement yet very hard to remember. During my quiet time this morning, I was reminded, it's not about me. There have been a lot of emotions we have been dealing with the past few weeks, you know? As much as you say that everything is good and you just want God's will to be done sometimes you kind of get scared when things happen. Let me elaborate a little. This is something we have not shared with many people. A couple of weeks ago, Megan had a seizure. It was a small one. I was at the ENT when it happened. The doctor had not come in yet and I was terrified. I thought that maybe it was nothing but deep down I knew exactly what it was. There was no doubt in my mind. I immediately thought, I am not ready for this. I pray they do not become more frequent because that would open up a whole other issue for us. At any rate, my point is I became scared. I think it is a natural reaction. It was one more thing that said, she has this dreadful mito disease. One more thing that said, yes we will more than likely have to watch our child decline if they don't find a cure. Negative thoughts can fill your mind pretty quickly when you are faced with something like this. I felt so awful for Megan. And once again I felt guilty for doing this to her because I know it is all my fault. And I have been feeling like that basically since she was diagnosed with Mito. So, this morning I was reminded once again, that it is not about me. Praise God! Our daughter's name is Megan Elizabeth Cochran. Her name is NOT Mitochondrial Encephalomyopathy, cyclic vomiting, violent choking, hypotonia, severe reflux, medically fragile, on a 24 hour drip with a g-tube and leg braces Cochran. Sometimes you can forget that, as silly as it sounds. You become consumed with this terrifying disease, you know? However, she is a child of God and she is a gift from our Father, just like all children. The fact that she is a brown haired, blue eyed, absolutely gorgeous little baby girl, with a personality that will suck you in faster than you realize, and a finger that will wrap you around so fast it will make your head spin, well that is just a perk, haha! I am reminded of Bekah's moms post the other day when she said something like she would give anything to have Bekah here even if it was at the hospital fighting with the nurses for bringing her medicine too late. Reading her posts, man, what a fantastic woman! We don't want to miss a single thing with Megan. More importantly we don't want to miss a single thing God has planned and is trying to tell us along Megan's journey. It is very easy to be tempted, especially in situations like this, to give into certain things, but that is not the way we want to handle this nor would it be glorifying God. So instead, we have to stay in His word constantly, no matter what (because there really are no excuses) and be obedient. And praise God he will never leave us! He is walking with us and more times than not carrying us through this. Thank you Heavenly Father!!!
Thank you Melissa (our wonderful PT)who gave me a devotional book called Streams In The Desert, man it is phenomenal! You are such a blessing to us! So tomorrow we are going to Aunt Emily's house to have pictures made of the kids. They have a studio in their house and we are so thankful her and Uncle Peter want to do this for us. We are so excited! So keep a look out and we will be posting new pictures to the web-site soon. Megan has her 18 month check-up on Monday so I will post an update then. God Bless you guys! What an honor it is to have you all in our lives.
END OF LINE
JR
It's not about us.
A simple statement yet very hard to remember. During my quiet time this morning, I was reminded, it's not about me. There have been a lot of emotions we have been dealing with the past few weeks, you know? As much as you say that everything is good and you just want God's will to be done sometimes you kind of get scared when things happen. Let me elaborate a little. This is something we have not shared with many people. A couple of weeks ago, Megan had a seizure. It was a small one. I was at the ENT when it happened. The doctor had not come in yet and I was terrified. I thought that maybe it was nothing but deep down I knew exactly what it was. There was no doubt in my mind. I immediately thought, I am not ready for this. I pray they do not become more frequent because that would open up a whole other issue for us. At any rate, my point is I became scared. I think it is a natural reaction. It was one more thing that said, she has this dreadful mito disease. One more thing that said, yes we will more than likely have to watch our child decline if they don't find a cure. Negative thoughts can fill your mind pretty quickly when you are faced with something like this. I felt so awful for Megan. And once again I felt guilty for doing this to her because I know it is all my fault. And I have been feeling like that basically since she was diagnosed with Mito. So, this morning I was reminded once again, that it is not about me. Praise God! Our daughter's name is Megan Elizabeth Cochran. Her name is NOT Mitochondrial Encephalomyopathy, cyclic vomiting, violent choking, hypotonia, severe reflux, medically fragile, on a 24 hour drip with a g-tube and leg braces Cochran. Sometimes you can forget that, as silly as it sounds. You become consumed with this terrifying disease, you know? However, she is a child of God and she is a gift from our Father, just like all children. The fact that she is a brown haired, blue eyed, absolutely gorgeous little baby girl, with a personality that will suck you in faster than you realize, and a finger that will wrap you around so fast it will make your head spin, well that is just a perk, haha! I am reminded of Bekah's moms post the other day when she said something like she would give anything to have Bekah here even if it was at the hospital fighting with the nurses for bringing her medicine too late. Reading her posts, man, what a fantastic woman! We don't want to miss a single thing with Megan. More importantly we don't want to miss a single thing God has planned and is trying to tell us along Megan's journey. It is very easy to be tempted, especially in situations like this, to give into certain things, but that is not the way we want to handle this nor would it be glorifying God. So instead, we have to stay in His word constantly, no matter what (because there really are no excuses) and be obedient. And praise God he will never leave us! He is walking with us and more times than not carrying us through this. Thank you Heavenly Father!!!
Thank you Melissa (our wonderful PT)who gave me a devotional book called Streams In The Desert, man it is phenomenal! You are such a blessing to us! So tomorrow we are going to Aunt Emily's house to have pictures made of the kids. They have a studio in their house and we are so thankful her and Uncle Peter want to do this for us. We are so excited! So keep a look out and we will be posting new pictures to the web-site soon. Megan has her 18 month check-up on Monday so I will post an update then. God Bless you guys! What an honor it is to have you all in our lives.
END OF LINE
JR
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Submitted by J-Cat on Sat, 06/16/2007 - 11:54
Submitted by ATC_1982 on Fri, 09/07/2007 - 12:46