JollyRoger
Shared on Tue, 07/10/2007 - 10:52So, here you go:
This has definitely not been one of Megan's best days. She has been extra tired today and when she is awake, the time I gave her off her feeding machine (which was not very much) she was very clumsy and kind of out of it a bit. We can tell when she is having a rough day when she can't stand up very long, runs into things a lot and she is constantly falling down. It wears her out so she ends up just laying there or wants to be held. Of course we don't pass that up. She also had trouble bending over to pick things up. I noticed when she was playing she would drop something and then try to bend down and pick it up and she just couldn't do it. She is back in her chair again, sleeping and eating. She has also had a vomiting spell today. We are praying that was just a one time deal maybe. I sure hope this isn't the start of her usual cyclic vomiting. It's days like this that are very hard to see, you know? She tries to play but her body doesn't feel like it and she doesn't understand. Maybe after her surgery on Tuesday she will feel a little better. Megan is an amazing trooper so who knows, she could wake up in the morning and feel great. She never seizes to amaze us! Even when she fell down today, I picked her up to rock her and she laid there with tears in her eyes. I looked down at her and gave her a little smile and she just crinkled up her nose and smiled right back at me. So Sweet!!!
You know, right now I am sitting at my desk and in one recliner is my dad, sleeping away (his favorite thing to do is fall asleep in one of the recliners) and Megan is in her chair sleeping as well. I was staring at the two of them and I thought about how the two of them are so much alike. They both require a lot of attention and need help with almost everything. We have to give both of them their medicine, pick out their clothes, feed them, take them wherever you go and make sure they know how much they are loved. The only real difference is my dad is 73 and Megan is 16 months. Jim and I took my dad to get a new eye exam and pick out new glasses this evening. We got there pretty early so we could pick out some glasses. Jim was taking care of keeping the kids occupied so I could help my dad. He really didn't understand what the doctor was saying so the doctor would tell me and I would try and explain it to my dad. When we finally finished up, he asked the lady who was helping us if she was a daughter. She said yes but her parents had passed away when they were in their 50's to cancer. She told him she was a mother though. My dad looked at her with tears in his eyes and said, I can't live by myself anymore. I feel like I have lost everything and my mind is slowly going. I know I am hard to be around sometimes but my daughter and son-in-law have taken me in their home. I am so happy to be with them because I am so scared but they understand and have taken care of me and they love me. I hope you have as amazing children as I do. He had a hard time getting all those words out and stumbled a bit but as he finally got the words out and wiped his tears he looked at her and said, thank you for being nice to me too. I didn't say all of this to toot our horn by any means. Hearing my dad say all that though, really just made me realize how thankful I am to be able to take care of him. It literally may be like having another child like Megan, Jimmie, or Ian. But he needs to feel that love just like our children do and that is the least we can do, isn't it? And to show kindness? He couldn't stop thanking Jim's mom and dad for helping him while we were at the fireworks the other night. And he was so appreciative to the lady today for taking time with him even though it was so hard for him. I don't know, I may be rambling but in a world like we live in today, showing some kindness and love really seems like such a small task, you know? You never know when it is going to make such a difference. I guess that is it for now. Love you guys so much! Pray on!
And Megan got a lollipop after getting her hair cut yesterday. Yes, I know it's blurry. Sorry. :)
END OF LINE
JR
This has definitely not been one of Megan's best days. She has been extra tired today and when she is awake, the time I gave her off her feeding machine (which was not very much) she was very clumsy and kind of out of it a bit. We can tell when she is having a rough day when she can't stand up very long, runs into things a lot and she is constantly falling down. It wears her out so she ends up just laying there or wants to be held. Of course we don't pass that up. She also had trouble bending over to pick things up. I noticed when she was playing she would drop something and then try to bend down and pick it up and she just couldn't do it. She is back in her chair again, sleeping and eating. She has also had a vomiting spell today. We are praying that was just a one time deal maybe. I sure hope this isn't the start of her usual cyclic vomiting. It's days like this that are very hard to see, you know? She tries to play but her body doesn't feel like it and she doesn't understand. Maybe after her surgery on Tuesday she will feel a little better. Megan is an amazing trooper so who knows, she could wake up in the morning and feel great. She never seizes to amaze us! Even when she fell down today, I picked her up to rock her and she laid there with tears in her eyes. I looked down at her and gave her a little smile and she just crinkled up her nose and smiled right back at me. So Sweet!!!
You know, right now I am sitting at my desk and in one recliner is my dad, sleeping away (his favorite thing to do is fall asleep in one of the recliners) and Megan is in her chair sleeping as well. I was staring at the two of them and I thought about how the two of them are so much alike. They both require a lot of attention and need help with almost everything. We have to give both of them their medicine, pick out their clothes, feed them, take them wherever you go and make sure they know how much they are loved. The only real difference is my dad is 73 and Megan is 16 months. Jim and I took my dad to get a new eye exam and pick out new glasses this evening. We got there pretty early so we could pick out some glasses. Jim was taking care of keeping the kids occupied so I could help my dad. He really didn't understand what the doctor was saying so the doctor would tell me and I would try and explain it to my dad. When we finally finished up, he asked the lady who was helping us if she was a daughter. She said yes but her parents had passed away when they were in their 50's to cancer. She told him she was a mother though. My dad looked at her with tears in his eyes and said, I can't live by myself anymore. I feel like I have lost everything and my mind is slowly going. I know I am hard to be around sometimes but my daughter and son-in-law have taken me in their home. I am so happy to be with them because I am so scared but they understand and have taken care of me and they love me. I hope you have as amazing children as I do. He had a hard time getting all those words out and stumbled a bit but as he finally got the words out and wiped his tears he looked at her and said, thank you for being nice to me too. I didn't say all of this to toot our horn by any means. Hearing my dad say all that though, really just made me realize how thankful I am to be able to take care of him. It literally may be like having another child like Megan, Jimmie, or Ian. But he needs to feel that love just like our children do and that is the least we can do, isn't it? And to show kindness? He couldn't stop thanking Jim's mom and dad for helping him while we were at the fireworks the other night. And he was so appreciative to the lady today for taking time with him even though it was so hard for him. I don't know, I may be rambling but in a world like we live in today, showing some kindness and love really seems like such a small task, you know? You never know when it is going to make such a difference. I guess that is it for now. Love you guys so much! Pray on!
And Megan got a lollipop after getting her hair cut yesterday. Yes, I know it's blurry. Sorry. :)
END OF LINE
JR
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Comments
Submitted by Anonymous (not verified) on Tue, 07/10/2007 - 16:54
Submitted by DrPlague on Tue, 07/10/2007 - 11:13