JollyRoger's blog

First things first. Megan is getting better. She had a cold over the weekend which is why we didn't get to come home. They will absolutely not do this biopsy, if she is sick. But, she is getting better. She was up until about 10:30 last night just babbling away. It was great to hear her talk to herself. I was just laying in  my fold out bed just listening to her, and begging God to let us go home. I actually got to stay at home. Hooray you think? Well, the boys were sick with colds, so I spent most of my time taking care of them. I'm gonna be up front and honest with all of you.

First things first. Megan is getting better. She had a cold over the weekend which is why we didn't get to come home. They will absolutely not do this biopsy, if she is sick. But, she is getting better. She was up until about 10:30 last night just babbling away. It was great to hear her talk to herself. I was just laying in  my fold out bed just listening to her, and begging God to let us go home. I actually got to stay at home. Hooray you think? Well, the boys were sick with colds, so I spent most of my time taking care of them. I'm gonna be up front and honest with all of you.

She's resting quite comfortably:






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JR

She's resting quite comfortably:






END OF LINE


JR

We got word late yesterday that Megan's muscle biopsy has been approved by our insurance company. This is HUGE news. The doctor that is doing it is not under our insurance coverage, and then again, he's the only one down here that does it. She is scheduled for a consultation on Valentine's Day and her biopsy will be on Thursday 2/15. Not sure how long it will take to get results back, but it's nice to know that it is going to get done. Secondly, we are still at the hospital. Megan has a sinus infection and they want to get it under control. Main reason?

We got word late yesterday that Megan's muscle biopsy has been approved by our insurance company. This is HUGE news. The doctor that is doing it is not under our insurance coverage, and then again, he's the only one down here that does it. She is scheduled for a consultation on Valentine's Day and her biopsy will be on Thursday 2/15. Not sure how long it will take to get results back, but it's nice to know that it is going to get done. Secondly, we are still at the hospital. Megan has a sinus infection and they want to get it under control. Main reason?

Megan will not be having surgery tomorrow. They think it will do more harm than good. They are going to focus a little more on her bowels due to then fact that she is have some real problems going potty. They don't want any of that to back up into her GI tract somewhere and cause her harm. They are going to do some x-rays, presumably of her GI tract, to see if everything is in order. I'm crossing my fingers that they will let us go home tomorrow, but that is not in my hands, it is in His.

Megan will not be having surgery tomorrow. They think it will do more harm than good. They are going to focus a little more on her bowels due to then fact that she is have some real problems going potty. They don't want any of that to back up into her GI tract somewhere and cause her harm. They are going to do some x-rays, presumably of her GI tract, to see if everything is in order. I'm crossing my fingers that they will let us go home tomorrow, but that is not in my hands, it is in His.

OK, they did NOT replace her tube today. For what reason, I have no idea. They did do her GI ultrasound, but we won't know results from that until later. They rescheduled her tube replacement for first thing tomorrow morning. Other than that she is doing well. A friend of mine replaced the starter for my car, in the Wal-Mart parking lot last night. That was most excellent. Best $150 I've spent in a long time. So, my car is running again, Megan is doing OK at the moment and the doctor screwed us again with rescheduling something.

OK, they did NOT replace her tube today. For what reason, I have no idea. They did do her GI ultrasound, but we won't know results from that until later. They rescheduled her tube replacement for first thing tomorrow morning. Other than that she is doing well. A friend of mine replaced the starter for my car, in the Wal-Mart parking lot last night. That was most excellent. Best $150 I've spent in a long time. So, my car is running again, Megan is doing OK at the moment and the doctor screwed us again with rescheduling something.