Update on Megan
This is more of an official update. In all my excitement yesterday, I just simply posted that she had gained weight. w00t! This goes into a bit more detail of what's going on with her and her new leg braces, or "Magic Shoes". :)
For those of you who have not heard yet, we got some very exciting news yesterday; Megan now weighs 16 pounds and 6 ounces! This is such a HUGE deal! I almost didn’t believe it when I stood there and stared at the scale. My eyes filled with tears and everyone gathered around the scale started cheering and jumping up and down. For those of you who see her frequently you will agree that Megan does not look like the same baby. It is amazing what a little weight can do and more importantly I am still in awe at what God is doing. Seriously, I get chills every time I think about it, you know? We just can’t get enough of her chunky little legs, which I wasn’t sure I would ever be able to say. She is still having choking spells and her throwing up but right now it is not hindering her weight gain. She went to the ENT on Monday and they are going to see her back in three weeks to see if any of the new medicines they have put her on are working. They are also going to decide if they should go ahead and remove her tonsils and adenoids. We keep putting this off put when she went in they said she was just getting worse and they are afraid of airway obstruction. We definitely do not need that but it is also not a real good idea to put her to sleep again and remove her tonsils and adenoids because she is tube fed and cannot take anything by mouth. They said it would be real tricky on her and a much worse recovery. A simple surgery is a very hard decision to make on someone like Megan is what he said. Anyways, we are going to wait the three weeks and make a decision then. I tell you what between her and Ian we have a small pharmacy in our house. They both go to the same ENT doctor and he told me on Monday (they both had appointments) that Ian’s asthma had come back along with his reflux and his surgery that he had a few weeks ago did not help at all. They are also afraid he is starting to show signs of hearing loss. We knew he had not gotten any better but I had not idea he was having such a hard time breathing. He said he was wheezing really badly and they needed to add an extra asthma pill to help control it along with three new allergy medicines and a medicine for his reflux. Then we will be taking him to an allergist to do skin testing to see what his causing all this. Thankfully our oldest, Jimmie, is not having any issues at the moment. He is on spring break this week and has been a little helper to us. So, I am taking my next big step. I am actually leaving Megan for a little while tomorrow with my parents. The only time we have ever left her was with a friend of ours who is a nurse and she knew exactly how to care for Megan and how to work her machine. I have just never been able to leave her but I figure of couple of hours would be ok. Besides she will be in excellent hands and my dad knows how to work a feeding machine, believe it or not, which is wonderful! Jimmie actually made a comment to me yesterday that I am always so busy and we are always going to the doctor, so I figured he needed some special time for just him. So that is what I am going to do. Well, I guess that is about it for now. Megan gets her leg braces on the 17th of April. We are having a few issues with insurance right now about her braces but we should know something in the next couple of days so just pray that it is all straightened out. Once she is fitted she will go back to the prosthetics doctor every week to make sure they are comfortable for her. They put a bit of a rush on it so they can get her comfortable in them by the time we leave for vacation in May. Yes folks, that is right, we are going on vacation and I still cannot believe it is true. We have not been on a vacation in years. We are going to go to Disney World and we cannot wait to see the look on the kid’s faces when we get there. We are praying Megan keeps on accepting this formula, the new meds and the weight keeps going up and that the biopsy results come back soon. They should be here sometime in May, hopefully. God is totally awesome!!! We pray everyone will have a wonderful Easter weekend. Besides, knowing Jesus rose from the grave, how could we not have an amazing day! God Bless!!
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JR