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Update on an update

J
JollyRoger

Many of you read this morning's update blog. Well, here is an update to what happened yesterday:

Hey guys, just a quick update. Megan had a restful night and she had done decently well today until her physical therapy. She choked real bad and then threw up. Her therapist said she can tell that her tone in her legs is getting worse than it was most likely because of the poor weight gain. She also said it seemed like her skin was starting to just hang on her legs. It’s kind of sad because she has always kept her chunky little legs even from birth. She has limited her to 4/20 minute activity times a day. The rest of the time she needs to be resting either in her chair or bed. She said we have to try this because her weight is just getting so bad. It is going to be kind of hard for her but maybe it will help. She gave me some ideas for some toys to get for her to help while she has to rest so much during the day. Our oldest, Jimmie, is at my parents house because he got sent home from school with pink eye this morning. They said there had been a few cases of it over the past few days at his school. We are trying to do everything we can to try and keep Megan from getting that as that is the last thing she needs. Anyways, he has some eye drops from the doctor and hopefully he will be better tomorrow. I can promise you he was not upset at all to have to leave school and go to his Nana’s and Pepaw’s house. JThank you guys for praying for Megan and we will keep you updated as we know things. God Bless and have a wonderful evening!

I hate that they are limiting her activities to 4/20 minute sessions, but we have to conserve what little weight she has left.


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JR

Comments (5)

G
Gatsu·
The lack of weight gain is because she isnt able to keep much down? Or because she burns it so fast? Or is that also part of the possible disorder she has?
J
JollyRoger·
Gat, we think the disorder she has affects the way her cells burn the energy she gets from the food. We think it's causing her to burn the energy too fast. Again, this will be proven when we go visit the mitochondrial specialist.
D
doodirock·
Jolly, if you need anything or just want to talk you can always call me. I never see you on COD anymore and I miss hang'n out. Damn you R6:V
O
OldManRiver48·
There are so many limitations for weight gain\r because of her age,have they indicated if she\r has a high metabolism? I've heard of medications\r to slow the metab. for adults needing to gain \r weight but probably not a good idea for her....\r but a thought. Megans parents sholders are huge but dont hesitate to reach out if we can help!
S
stang503421·
Same here Jolly - please let me know if there's anything we can do for you.